Southeastern PANS/PANDAS Association (SEPPA)

$1,815.00 contributions
19 donors

Raised: $1815Remaining: $6185

Join us in Fall 2017 as we work with parents, provider and policy makers to bring post-infectious autoimmune encephalopathies like PANS and PANDAS into clearer focus.

SEPPA's 20/20 campaign encompasses three efforts.

First, we will use social media advocacy and parent-to-parent education to educate more parents about the existence of PANS/PANDAS so they know the signs to watch for whe their children have been sick. 

Second, SEPPA is collaborating with the Georgia Chapter of the American Academy of Pediatrics (GA-AAP) to inform their members about the treatment guidelines recently published in the Journal of Child and Adolescent Psychopharmacology (JCAP). The guidelines were developed by an Working Group of PANS/PANDAS experts convened by the National Insitutes of Health (NIH). The guidelines make it possible for a general pediatrican to handle almost all facets of diagnosis and treatment. GA-AAP will publish a newsletter that includes and article about the JCAP guidelines, and SEPPA will host an educational booth at GA-AAP's Fall 2017 conference. 

Third, SEPPA will be working with local families affected by these conditions to hold in-district coffees with elected officials before the legislature reconvenes in January 2018. Our goals are to generate support for a legislative proclamation for a PANDAS Awareness Day in October 2018 and to develop relationships to help with future legislative activities such as the creation of a medical advisory board and passage of legislation mandating insurance coverage for appropriate therapies like extended antibiotics, IVIG, plasmapheresis and Rituximab. 

Finally, our inaugural 20/20 campaign will help lay the groundwork for SEPPA to meet one of its biggest goals: faciliating the opening of an Atlanta-based NIH-designated Center of Excellence for the diagnosis and treatment of post infectious autoimmune encephalopathies by 2020. 
Gail M donated $25.00
Kathryn J donated $100.00
Maria and Jim M donated $50.00
by Anonymous donated $100.00
Kathryn J donated $25.00
Kathryn J donated $50.00

Updates and Donors' Comments


To honor Jessica for her tireless efforts to promote awareness and assist in the recognition of Pandas in the medical community.


Prayers for continued improvement for James and John.