The Lighthouse Lymphedema Network (LLN) was founded in 1993 with the mission to increase awareness and general knowledge of the condition known as lymphedema and to serve as a conduit of information and support amongst those impacted by lymphedema. This year the LLN celebrates 24 years of serving the lymphedema community in Georgia and beyond. Through the tireless efforts of volunteers, the LLN has experienced continued growth and recognition while educating and assisting patients, families, caregivers, the medical community, insurance companies, and other lymphedema support groups.
Lymphedema is swelling that is caused by damage to the lymphatic system from any source: injury, surgery, radiation and infection, to name a few. When lymphatic fluid is unable to be transported through the body, it accumulates, causing swelling. It most often occurs in the arm(s) and/or leg(s), but can also affect other parts of the body such as the head, neck or trunk. The condition is often undiagnosed or misdiagnosed, leading to incorrect treatment or no treatment at all.
The LLN primarily serves patients, caregivers, lymphedema therapists and the general public throughout Georgia, but also reaches individuals around the nation and even the world. Some of the services provided are quarterly newsletters (paper and electronic), semi-annual meetings for patients and therapists to dialogue openly, an annual educational conference engaging experts in the field of lymphedema, fundraising and public awareness events, collection of new and gently used garments and bandages for therapists in Peru, South Africa and Haiti, and the Bandages and Garments Fund, which provides compression supplies for patients in financial need.
All of these LLN activities are achieved by a host of volunteers--the LLN has no paid staff. 100% of LLN funding directly benefits the lymphedema community. Funds are generated through fundraisers, grants and private donations.
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